Myositis - The Hong Kong Society of Rheumatology

Member List

Conveners

Dr Yip Man Lung, Ronald
drmlyip@ymail.com
Dr. Ho SO
hoso@cuhk.edu.hk

KWH

Dr. Iris Tang
Dr. Lucas Luk

QMH

Dr. Teresa Li

PWH

Dr. Tommy Lam

TMH

Dr. Sammas Chu

PMH

Dr. Tom Wu

CMC

Dr. Joyce Young

UCH

Dr. Mun Chi Leung

TKOH

Dr. Billy Lai

QEH

Dr. Roy Ho

YCH

Dr. Patrick Lee

AHNH

Dr. Chi HO

RH

Dr. Sandy Woo

POH

Dr. Judy Chung

PYNEH

Dr. Amy Yung

MyoHK – Hong Kong Myositis Registry

The Hong Kong Myositis Registry (MyoHK) is created to obtain uniform, systematic and potentially longitudinal data on Hong Kong adult myositis patients.

The objectives are to increase our knowledge on disease course, clinical characteristics and prognosis. In addition, this could be used as a tool to assess our patients during follow-ups. This can also serve as a platform to encourage collaborative myositis research.

Data entry will be done by the MyoHK Governing Committee members employing a web-based system, REDcap, maintained by the Big Data Decision Analytics Research Centre, The Chinese University of Hong Kong. MyoHK is financially supported by the HKSR project fund.

REDCap (https://redcap.cuhk.edu.hk/): 'HK Myositis Database'

Past activities

2018

2019

Muscle histology and electromyography workshop 2018

APLAR collaborative projects on MSA and myositis phenotypes since 2019

Publications

1. So H, So J, Lam T, Wong V, Ho R, Li T, Mok CC, Lau CS, Tam LS. Performance of the 2017 EULAR/ACR classification criteria in anti-MDA5 associated idiopathic inflammatory myopathy. Arthritis & Rheumatology 2022. [accepted]

2. So J, So H, Wong V, Ho R, Wu TY, Wong PCH, Tam L, Ho C, Lam T, Chung YK, Li T, To CH, Lau CS, Mok CC, Tam LS. Predictors of rapidly progressive- interstitial lung disease and mortality in patients with autoantibodies against melanoma differentiation-associated protein 5 dermatomyositis, Rheumatology 2022. [in press]

3. So H, So J, Lam T, Wong V, Ho R, Li T, Lau CS, Tam LS. Seasonal effect on disease onset and presentation in anti-MDA5 positive dermatomyositis. Frontiers in Medicine 2022;9:837024.